I learned a lot from reading “Fragile X Fragile Hope” by Elizabeth Griffin and also found it to be inspirational. Her son, Zach, is intellectually disabled and displays autistic features, which was caused by Fragile X syndrome.
Elizabeth Griffin talks about the medical ramifications that cause her son to struggle in daily life. For example, Zach’s stress hormones are heightened whenever he experiences a stressor. Also, those chemicals will remain active in the brain much longer than normal. As a result, he struggles to remain calm during normal daily events.
Elizabeth Griffin also discusses her feelings of desperation, guilt, and grief. She gives an honest portrayal of those emotions and how they affected her life. Support groups became essential, so she could work through those feelings and thoughts without fear of judgement.
There is section about navigating the maze of available services. She discovered some treatments were a waste of time and money, but others were extremely beneficial. Therefore, it is important to fully investigate your options and the services offered.
I recommend this book to anyone with a special needs child. It is also beneficial to people who want to gain a better understand of the struggles faced by parents with disabled children.