I stumbled across this news article the other day.
To sum it up, a forth grader with a hearing disability saw a kindergartner wearing hearing aids, so he went up the kindergartner and introduced himself. The kindergartner was thrilled to meet another child with hearing aids.
The two boys have become friends, due to their shared experience. They are able to work together to teach other kids about their disability and how hearing aids work.
They can also help each other navigate through obstacles and pitfalls that occur when you have a hearing disability in childhood.
This article touched my heart, because I too have a hearing disability that started in early childhood. I wasn’t lucky enough to meet another hearing disabled child, so I often struggled alone.
Even as an adult, if I run into a young person with a hearing aid I feel an immediate connection. I want to talk to them about their experiences, how they handle certain situations, and how having a hearing disability has impacted their life.
Growing up with a hearing impairment is a unique experience and not something most people can understand. I am glad these boys found each other.
I was born with inner-ear deformities, so I have dealt with hearing loss my entire life.
In school, I struggled to hear the teacher. As a result, I was viewed as intellectually challenged. I was also punished for failing to follow directions that I never heard or that I misunderstood.
I couldn’t explain to the adults in my life what was happening. I didn’t understand it myself. I didn’t know the other children were hearing things that I missed.
For me, I think the saddest part of growing up with a hearing disability, is believing I was stupid and that I would never succeed in school or in life.
I’ve worn the BAHA (Bone Anchored Hearing Aid) implant for a couple of months now, so I thought I would write an updated review.
On the plus side, I am hearing a lot better with the implant. The other day, I was listening to crickets. I thought it was so funny that they sound like birds. I also find it easier to communicate with people. A few times, I even understood what someone behind me said. That was cool.
On the negative side, the outer processor is very delicate. I can’t wear it when I am engaging in any physical activity. I also can’t wear a hat with the outer processor. That has been frustrating for me, since it limits my ability to use the BAHA implant.
I would still recommend the BAHA implant to anyone that needs it. It is a great device and I enjoy having it.
I finally got the outer processor for my BAHA (Bone Anchored Hearing Aid) implant this week. I am not really sure how I feel about it yet.
I am hearing better, which is great. However, it sounds a lot different from a typical hearing aid. I struggle to understand what people are saying, but I guess that will get better as I get used to the device.
The outer processor has a magnet, which attaches to the magnet under my skin, and sends the sound vibrations to the titanium screw in my skull, which then vibrates to send the sound directly to my inner ear. The two parts are working great together and putting on the outer piece is really simple. I just hold it up to my head, so the magnets can pull toward each other, and it pops into place.
The downside of the magnet system is the outer processor can be knocked off my head. It’s a delicate and expensive device, so dropping it is not recommended.
The audiologist did give me a clip with a plastic wire that can attach to the outer processor and then it can be clipped to my shirt. I am not a fan of this device. I feel like a preschooler, whose parents clipped stuff to their shirt to prevent them from losing it.
In about a week or so, I am going to write another blog post about the implant. By then I will be used to it, so some of these problems should be solved.
The bandage is off my head now and the incision is healing nicely.
The BAHA surgery involves drilling into the skull, so it sounds like it would be extremely painful. However, the pain is fairly minimal.
My biggest struggles right now are getting very dizzy whenever I first stand up and everything taste bad. Temporally losing taste is not uncommon whenever surgery is done on your ears, because there are a lot of nerves that run through that area and into the sinus cavity.
This isn’t the first time I have had some nerve damage after an ear surgery and I have never had any long lasting complications. Therefore, I am not worried about losing my ability taste food at the moment.
Overall, things are going well. I am mostly resting and watching an enormous amount of documentaries.